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My Aura Borealis

Embracing A Beautiful Life With Epilepsy

Sir Elton John – A Vibrant Journey through the world of Music and Epilepsy

February 15, 2017 by Bailey

elton john celebrity epilepsy icon

On March 25, 1947 a star was born in London. Reginald Kenneth Dwight took to music at a very early age. He learned to play piano at age 3, simply by listening to a recording of The Skater’s Waltz. At age 4, his parents signed him up for proper lessons and he took to them with a hunger unusual for his young age. A few years later, his hard work began to pay off as he was awarded a scholarship as a Junior Exhibitor to the Royal Academy of Music at age 11. This scholarship gave him the opportunity to accelerate his musical talent even further by attending the Academy on Sunday mornings over the next four years. Through out these years at Academy, Reginald gained notoriety at school functions by playing with a similar style to the famous Jerry Lee Lewis.

At age 17, his parents divorced and his father no longer supported young Reginald’s passion of music. Much to his fathers dismay however, Reginald quickly dropped out of school and took up with a group calling themselves Bluesology. In 1967, he answered a newspaper ad for Liberty Records songwriter. He was given the position and soon after changed his name as a way to pay homage to two of his Bluesology mates; saxophonist Elton Dean and vocalist Long John Baldry.

His new name? Elton Hercules John

Growing up through the 1960’s and 70’s, he was exposed to a wide variety of ways to celebrate fame and fortune, primarily by experimenting with drugs. Around the same time that he was proclaimed the Biggest Pop Star of the 70’s, he began heavily using both cocaine and alcohol. On top of this, he also struggled with bulimia, which was amplified by the intensive drug use. In 1975 he suffered a drug overdose and began having Epileptic seizures as a result. These seizures were so severe, that he would turn blue from lack of oxygen. In his own battle of will, Elton John explained to doctors that he needed the cocaine to forget about the seizures he was struggling with.

A few years later, in 1986, Elton John underwent throat surgery while on concert tour. He recovered rather quickly and spent the next few years focusing on both his career and on getting clean. In an effort to give back, and focus less on himself, Elton began auctioning off some of his most cherished possessions in 1988. These included his theatrical costumes, his prized record collection, and much more. By 1990 he was clean and sober. This clarity prompted him to give back to others even further, and he started the Elton John AIDS Foundation. Along with this foundation, he began donating all royalties from his single album sales to AIDS research.

In 1997, he suffered the loss of his very dear friend, Princess Diana. At her memorial he performed his original song “Candle In The Wind”, which soon became the fastest selling hit of all time in both Britain and the U.S. After the memorial he was knighted Sir Elton John, at a special ceremony held in his honor. The Queen publicly recognized him in this way for his diligent work towards AIDS research and for his services to British pop music.

In addition to this knighting ceremony, Elton John has received an incredible number of awards and nominations through out his colorful career. A few of these are, an Academy Award for Best Original Song, a Grammy for Best Male Pop Vocal Performance, and an induction into the Rock & Roll Hall of Fame. Overall he has released 30 different albums, and has sold 300 million copies to date.

His journey truly reminds us that Epilepsy can bring us to some very dark places. It can bring out sides of us that we didn’t ever know existed; some of them very lonely and some of them incredibly strong. Elton John’s persistence to music and to helping others shows us that our life with Epilepsy really can be full, exciting, and vibrant. Be strong. Believe in yourself. And be the best version of YOU that you can possibly be!

 

Thanks for reading and don’t forget to Seize The Day!

For more about Sir Elton John’s Epilepsy, look here

 

Coping with EEG Glue & Head Staples – Tips to Look and Feel Your Best!

February 12, 2017 by Bailey

favorite products cope with epilepsy injuries

Happy Sunday! It’s almost Valentines Day and people all over the world will be making efforts to look their very best. However, if you’ve recently had a seizure and sustained visible injuries, it can be difficult to truly feel like you look your best. Or, if you’ve had an EEG within the past few days, you may still be painstakingly picking that stubborn glue out of your hair!

I’ve been through my fair share of EEG’s; some sleep-deprived and some regular. After the first couple EEG’s I tried different shampoos and conditioners to get the glue out of my hair. My hair is fairly long so it takes a LONG time to get that glue to come out! After my 3rd EEG however, one of the nurses recommended that I try peanut butter to get rid of all that glue. That’s right, peanut butter! So delicious, so creamy, SO good at helping that glue slide right out of my hair!

Honestly, it really works!

I used regular old smooth peanut butter and brought it right into the shower with me. I would find a piece of glue with my hands and then thoroughly massage the area with peanut butter. Eventually, the glue slid right off! (I have not tried Chunky Peanut Butter for this maneuver, although I imagine it might be difficult to tell the glue from the peanut pieces while in the shower).

EEG glue
Here I am! Excited to get my EEG over with!

 

The other product that I have found really helpful is dry shampoo. After a particularly rough seizure on New Years Eve a few years ago, I woke up in the hospital with broken front teeth, a jaw out of socket, hypothermia, and staples in my head.

Not to mention all the other cuts, bruises, and sore muscles.

No offense to the person that put the staples in my head, I’m sure they were just trying to get them in there quickly, but there was SO MUCH hair trapped under those staples! To me, it seemed painfully obvious that something was stuck in my hair. We always tend to be our worst critics, don’t we? In hindsight, I’m sure that it wasn’t very obvious to other people. But I was pretty self conscious about it.

This dry shampoo made such a big difference for me! I sprayed it at my hair roots near the staples, while my hair was dry. Then I used a comb to gently tease the hair around the staples, so that I couldn’t see them anymore when I looked in the mirror.

To some, this might seem silly or even vain. My opinion? If I can take strides to feel as much like ME as possible, then I will be confident and prepared to spread hope and kindness to those around me. When I’ve had a seizure and am feeling battered and bruised, both emotionally and physically, it takes some extra effort to feel like myself. But if I can even spread hope to one other person, then that extra effort is totally worth it!

post seizure using dry shampoo for head staples
Here I am again! There are staples in my head but my dry shampoo worked great!

Do you have any favorite products that have helped you feel more like yourself after a seizure? I would love to hear your suggestions! Feel free to contact me with any ideas you have, and don’t forget to Seize The Day!

Homemade Chicken Parmesan Soup

February 10, 2017 by Bailey

Hi Everyone! We had another COLD snap in Minnesota this past week, so Andy & I decided it was time for some homemade soup! We found some recipes online and created our own spin on Chicken Parmesan Soup. It was AMAZING and it gave us enough leftovers for two more days! So, if you’re in the mood for something warm, cheesy, and delicious, check out our recipe below!

chicken parmesan soup epilepsy nutrition

Print

Chicken Parmesan Soup

Servings 6 people
Author Bailey Flach

Ingredients

  • 1 tbsp extra virgin olive oil
  • 1 tbsp pre-minced garlic
  • 3 tbsp tomato paste
  • 1 can diced red tomatoes
  • 6 cups low sodium chicken broth
  • 1 tsp red pepper flakes
  • 8 oz penne pasta
  • 10 Tyson breaded chicken tenders
  • 2 cups shredded mozzarella cheese
  • salt & pepper to taste

Instructions

  1. Bake chicken tenders according to package instructions. Allow to cool & then cut into 1" size pieces. 

    While cooling, prepare the remainder of the soup

  2. In a large pot, heat oil over medium heat. Add garlic & cook until fragrant, 1-2 minutes. Stir in tomato paste & crushed red pepper flakes

  3. Add canned tomatoes and chicken broth & bring to a simmer. Add penne paste and cook until al dente, 10-12 minutes. 

  4. Add pre-cut chicken strip pieces, and mozzarella. Let cheese melt and then add salt & pepper to taste. If desired, add more cheese on top when serving. 

Recipe Notes

For a hearty twist, try serving your soup in a warm bread-bowl!

William “Bud” Abbott – Comedic Legend Living with Epilepsy

February 7, 2017 by Bailey

Hi all! I hope you’re having a great week! I’m very excited to share another Famously Unknown with you & I hope you enjoy it as much as I do!

Abbott and costello epilepsy famous idols

In 1884 the Ringling Bros. Barnum & Bailey Circus opened its doors. One of the circus employees, Harry Abbott, worked as an advance man for the traveling acts. Soon however, he fell in love with the Circus’ bareback horse rider, the lovely Rae Fisher. The pair stayed with the circus after marrying and began talking about a family of their own. While the show was stationed in Ashbury Park, New Jersey, Rae gave birth to twins; a boy and a girl who both grew up loving the stage and all that went with it.

By the time the twins were 15 years old, Harry had changed careers and was working in the Burlesque Variety Show industry. He got his son a job in the box office to help bring in additional money for the family. Dropping out of school was no issue for the young boy, who spent his time daydreaming about comedic acts he himself could put on.

By 1918, Harry’s son had his own touring Burlesque show and married one of his stage dancers. Jenny Mae Pratt was both dancer and comedian, and she strongly preferred going by her stage name – Betty Smith. A few years after the pair married, Betty’s husband met comedian Lou Costello & the pair instantly formed a bond. Their comedic styles were such a match, that when Lou’s regular stage partner became ill, Betty’s husband filled in. From then on a permanent partnership was formed!

This first performance was on the infamous 42nd Street, and from there the hilarious duo went on to capture audiences through stage, film, radio, and television. Overall, they made 36 films together and were some of the highest paid world entertainers during World War II. At the age of 30, Lou’s stage partner developed sudden onset Epilepsy and began having frequent seizures. Not wanting to abandon their career, the team did their best to use this condition in their acts! If a seizure occurred while on stage (which happened quite a few times over the years), Lou would simply carry his partner off and pretend it was all part of the show. That dedication and commitment helped build a bond between the two men that lasted a lifetime.

By now, you may have guessed that Lou’s partner was none other than William “Bud” Abbott – their partnership being the world famous Abbott & Costello! Their sketch “Who’s On First” is one of the best known comedic acts of all time and it earned the pair a spot in the Baseball Hall of Fame, even though neither of them were baseball players! Abbott also earned 3 stars on the Hollywood Walk of Fame throughout his long career, before passing away from a stroke at the age of 79 in 1974. Even though he had Epilepsy, Bud found a way to share humor with his beloved audiences. This legacy reminds us that, even though our circumstances may not be what we had hoped for, there is always room for us to smile.

I know I will the next time I hear “Who’s On First”

Thanks Bud, for reminding us to Seize The Day!

Overnight Oats with… Nutella? Oh Yes!

February 4, 2017 by Bailey

overnight nutella oats epilepsy nutrition

Happy Saturday! Here is a fun twist I tried on Overnight Oats… and YES it includes Nutella! What could be better than Nutella for breakfast? This recipe is very quick to assemble and works well for breakfast or a quick afternoon snack to help promote a constant blood sugar level in your body.

 

Print

Nutella Overnight Oats

Servings 1 person
Author Bailey Flach

Ingredients

  • 1 cup Almond Milk
  • 1/2 cup Rolled Oats
  • 2 spoonfuls Nutella

Instructions

  1. In a pint size (16oz) mason jar, stir together your Oats and Almond Milk. When oats are thoroughly coated, stir in 1 spoonful of Nutella.

  2. Use either the mason jar lid, or tin foil to securely cover your jar. Refrigerate at least 8 hours. 

  3. After refrigeration, stir in one more spoonful of Nutella until well mixed

  4. Add your favorite toppings & Enjoy! Some tasty topping suggestions are raspberries, granola bar bites, coconut, or pistachios! 

  5. Hint: these ingredients will fill the entire mason jar, which can be a fairly large serving size. For a smaller portion, try cutting the recipe in half!

Medication Management with Nausea and the Stomach Flu

February 1, 2017 by Bailey

Minnie determined not to leave my side while I was sick

Happy Wednesday! Today I’d like to talk about medication management when dealing with the stomach flu, food poisoning, or nausea in general.

For me, I tend to get nauseous mid-morning almost every single day. I have tried quite a few varieties of what to eat & drink with my morning medications to try and ward off the nausea, but nothing really seemed to make a difference. With previous medications like Topamax, I really didn’t get nauseous that often but I struggled with quite a few other side effects. The Lamotrigine that I am on now however gives me pretty severe nausea. It’s especially bad if we are in the car anywhere mid-morning; I get carsickness just from backing out of the driveway!

Finally, I came across two products that really help!

The Ginger Chews I found at Trader Joes. The ones I use are a soft chew that you eat, but there are also hard candy varieties and gum varieties that would probably work just as well. They come in a bag of about 25 chews, but 1-2 of them seems to do the trick for me. They do have a somewhat spicy kick from the ginger, but that taste dissipates pretty quickly after swallowing.

The Mint Marrakesh Tea I found at Whole Foods. It is very slightly caffeinated so it works well for evening nausea or for people that are carefully monitoring their caffeine intake. I like to put a little bit of honey in mine and it settles my stomach really quickly!

However, when it comes to the stomach flu, our bodies tend to get rid of anything we put into them, so nausea remedies may not be as effective. Yesterday, I was on the couch all day with the stomach flu; I had a fever, was achy, very nauseous, and vomiting quite a bit. Unfortunately, two of these vomiting episodes occurred very soon after taking both my morning and evening meds. Luckily, my neurologist uses MyChart and I was able to quickly email her to find out what I should do. Should I re-take my meds? Should I just wait and see?

*Each neurologist will have a different response to this, since each of our diagnoses are different. Be sure to ask your neurologist for any advice that you may need regarding your medication.

Luckily, today I am feeling much better and the nausea has passed. I did end up re-taking my morning medication but not the evening dose since I was pretty certain that they did not come back up. I also did not have any seizures! I am very thankful that both Andy & my mom are so willing to alter their schedules to ensure that I am not alone. They made sure I had ample fluids, checked my temperature often, checked for any seizure Aura symptoms, and made sure that I was in a comfortable, safe position in case I did end up having a seizure.

Do you have any special remedies for your nausea? How about for any other medication side affects that you experience? Contact me with any recommendations you have; I’d love to pass it on!

Have a happy, healthy rest of the week and remember to Seize The Day!

Essential Oils and Epilepsy ~ Contributing to a healthy lifestyle

January 28, 2017 by Bailey

Essential oils with air diffuser & necklace diffuser

 

Happy Saturday! Weekends at our house mean catching up on cleaning, organizing for the week ahead, and having a little fun! One of our favorite ways to relax and feel rejuvenated over the weekend is by using our essential oil diffuser.

Before talking about the essential oils that I personally have found beneficial, I just want to clarify that as of now, most essential oil “uses” have not been evaluated by the FDA. Also, everyone’s body is different, so prior to using essential oils please make sure you talk to your neurologist about the potential effects on your Epilepsy.

I am a firm believer in Integrative Therapy. This means that I believe medication can go a long way to decrease seizure activity, and that other healthy living practices in addition to medication can be very useful towards improving our overall well being. Some of the healthy living practices I enjoy and find helpful (in addition to taking my AED’s) are: incorporating fruits and vegetables into my diet, taking regular walks, drinking plenty of water, getting 7-9 hours of sleep, taking quiet time to read/pray/meditate, and using both my essential oil air diffuser & my diffuser necklace.

The two brands of essential oils that I have experience using are Young Living and Nature’s Truth.

There is quite a bit of opinion-based information online about which essential oils are good and bad for seizure activity. A lot of this information is somewhat contradictory, so I am simply going to share which essential oils I have personally found to be beneficial for my wellbeing.

  • Eucalyptus – calming, invigorating, and known for its cleansing abilities
  • Grapefruit – uplifting, revitalizing, supports a healthy immune system
  • Lavender – calming, brings a sense of peace and harmony
  • Peppermint – uplifting, supports normal digestion
  • Tea Tree – purifying, useful for skin care and cleansing effects
  • Thieves – calming, supports the immune system

The main way that we make use of these essential oils is with our air-diffuser. It uses water and a few drops of your favorite essential oil to gently purify the air in your home. I also use a diffuser necklace; soaking a few drops of oil onto the clay ball inside the necklace allows it to disperse its scent close to your body so that you are immersed in it through out the day.

Do you have any essential oils other than these that you have found particularly useful? Do you have any questions about essential oils? If so, please feel free to contact me! I’d love to hear more about your journey with Epilepsy.

Have a fantastic weekend, and remember to Seize The Day!

Chicken Enchilada Quinoa Bake

January 25, 2017 by Bailey

Lately I’ve been seeing a lot of recipes that substitute quinoa for noodles or other carbs. I haven’t had quinoa too many times, but when I did, I loved it! So I decided to experiment a little and create a new spin on chicken enchiladas, using quinoa instead of tortillas. Andy & I both really like Mexican food so I thought this would be a fun one to try out! It turned out great and even reheated well the next day! Here’s what I did:

Print

Chicken Enchilada Quinoa Bake


Course Main Course
Cuisine Mexican
Prep Time 20 minutes
Cook Time 15 minutes
Total Time 35 minutes
Servings 6 people
Author Bailey Flach

Ingredients

  • 1 cup dry quinoa (white)
  • 2 cups low sodium chicken broth
  • 1 can black beans
  • 1 can corn
  • 1 tbsp olive oil
  • 1 tsp cumin
  • 1 tsp red pepper flakes
  • 1 rotisserie chicken
  • 1 can red enchilada sauce
  • 2 cups shredded cheese (I used Kraft taco flavored)

Instructions

  1. Preheat oven to 350 degrees

  2. In a small saucepan, cook quinoa in the chicken broth until fluffy (15-20 minutes). 

  3. After cooked, gently press quinoa into bottom of greased 9x9 baking dish. 

  4. On top of that add black beans and corn, spreading out evenly across the dish. 

  5. In a separate skillet, heat olive oil, cumin, and red pepper flakes until aromatic (2-3 minutes). 

  6. Next, stir in enchilada sauce and shredded chicken. 

  7. Once well mixed, add on top of your layered mixture in the baking dish. 

  8. Top with cheese if desired and bake at 350 for 15 minutes. 

  9. When serving, top with avocados, tomatoes, or green olives. 

  10. Enjoy!

Agatha Christie – Beloved Poet and Novelist

January 23, 2017 by Bailey

Happy Monday, everyone! I’m very excited to share another Famously Unknown story with you! My hope is that these bio’s will serve as an inspiration for you. These iconic celebrities have not only achieved great things and become well known, but they’ve done it all while living with Epilepsy. And if they can climb to great heights, I know that we can too!

I hope you enjoy today’s Famously Unknown!

In 1854, Captain Frederick Boehmer and his wife Mary Ann West gave birth to their only daughter. After bearing four lively boys, Clara was a treasure to her parents. Soon however, disaster struck. In a matter of time Mary had lost both her husband in a riding accident and one of her boys to ill health. Strapped with the pressure of raising her other 4 children on her own, Mary sent her Clara to live with her sister Margaret. Since Margaret had married a wealthy American businessman, she was financially prepared to provide for Clara. And since she had no children of her own, she was honored to raise the bright little girl.

As time went on, Clara grew into a lovely young woman and eventually married American stockbroker Frederick Alvah Miller. They moved to Torquay, in the United Kingdom, and settled down together. Finally, good fortune seemed to be coming Clara’s way. They were blessed with good health and three children; the youngest of which was born on September 15, 1890. She was a curious young girl that often suffered “episodes”, leading her mother Clara to believe that her daughter was psychic. These episodes however, alienated her little girl from other children. (It was later determined by neurological experts that these “episodes” were Epileptic seizures). Noticing that her daughter spent much of her time alone, Clara encouraged her to spend as much time as she could reading books. As the girl grew, she not only devoured the written word, she also began to write her own stories and plays.

This talent for writing eventually became a career for Clara’s intelligent daughter; a woman that Guinness World Records deems the “Best Novelist of all time”. Her literary works are the 3rd most widely published written material in the world – behind only Shakespeare and the Bible. Today she also carries the title of most translated individual author, with her books & plays having been translated into 103 languages.

So, who is Clara’s daughter? This bright young girl who so craved friendship & mystery that she began creating stories of her own? None other than the talented Agatha Christie: Poet, Novelist, Screenwriter, and Playwright. One of the world’s most beloved authors; she was once just a little girl living with Epilepsy.

 

 

For reference to Agatha Christie click here!

 

Epilepsy Foundation – new MN meeting locations!

January 20, 2017 by Bailey

Happy Friday! I just received some exciting news!

The Epilepsy Foundation of MN is expanding the number of Connect Meetings that they are holding each week! These Connect Meetings are held on Thursday evenings around Minnesota from 6pm-8pm.

After adding a few more meeting locations, EFMN now offers their meetings at:

  • Brooklyn Park Area: North Hennepin Community College
  • Apple Valley Area: Apple Valley Community Center
  • Eden Prairie Area: Eden Prairie Library
  • Woodbury Area: Woodbury Library

These meetings are open to anyone that is currently, or has been affected by seizures. That means you personally, family, friends, and anyone that wants to connect and learn more about seizures and Epilepsy.

How Cool!

More information can be found here: Epilepsy Foundation of MN website

Connecting with others that have Epilepsy can go a long way to help us reduce our feelings of isolation. Epilepsy can many times make us feel like a burden to those around us. We’re relying on people for so many facets of everyday life, and many people without seizures just don’t understand what that’s like. Getting perspective from others living a similar life to us can help remind us that everyone has their own version of “normal” life. Ours may look different from other’s, but that doesn’t make it weird or wrong.

Have you found other meetings near you that have helped you connect? Let us know! Have a fantastic weekend and don’t forget to Seize The Day!

Coming Soon! Aura Art

January 17, 2017 by Bailey

Aura Art - Coming to Etsy soon
Hello Readers! I want to share a creative venture I have coming up – Aura Art! Hopefully later this year in 2017 (or shortly thereafter) I’ll be launching an Etsy shop, and will post links and images here on this blog. I have always had a passion for art in a variety of mediums; it’s one of my favorite ways to just tap into myself and show how I am feeling.

Stay tuned for more information, or Subscribe below to get blog posts delivered right to your inbox!

It’s time to get Frosty!

January 10, 2017 by Bailey

Happy Tuesday, everyone! Today I’m going to share a new recipe that I created for.. drum roll please….. a healthy version of a Wendy’s Frosty!

I know, I know, its 20 degrees and snowing in MN. But who cares! This is chocolate we are talking about!

And one of the best things I can do to contribute to my overall health and ultimately try to stay seizure-free is by eating healthier and keeping my blood sugar steady. Since I love to cook and bake, I really enjoy creating healthier versions of junk foods that I love! That way, I can enjoy their yummy taste without feeling sluggish, or experiencing a sugar crash that may possibly contribute to making me more prone to having a seizure.

So, last night’s experiment was for the beloved Frosty! Andy loved it, I loved it, and our puppy Minnie was begging for a taste!

Here’s the recipe I came up with:

12 Ice Cubes

1 cup Almond Milk

1/2 Banana

1 tsp Vanilla Extract

1 tbsp Honey

2 tbsp Cocoa Powder

Blend it all together until well mixed, pour and enjoy! Yum! So, the question now is, what should I call it? Give the recipe a try yourself and see if any good names come to you. I hope you enjoy it as much as we did!

And remember to Seize The Day!

Andy & I enjoying our new take on Frosty’s!
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Celebrating A Beautiful Life With Epilepsy

Far away there
in the sunshine
are my highest aspirations.
I may not reach them,
but I can look up and
see their beauty,
believe in them,
and try to follow
where they lead

Louisa May Alcott

© 2026 · My Aura Borealis by, Insightful Elements